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Being Close to Someone With AuDHD: What Actually Helps?

If you are the partner, friend or colleague of someone with both autism and ADHD, what helps and what harms? Concrete sentences and practical arrangements.

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If someone close to you has both an autism and an ADHD diagnosis, the hardest part for you is probably the apparent inconsistency.

They like making plans but do not stick to them. They are overwhelmed by crowds but bored by staying at home. They bury themselves in a subject for months, then never mention it again. One surprise they greet with joy, and another ruins their day.

I do not have an autism diagnosis, and I am not about to give myself one. I am writing this article both as someone who knows the ADHD side from the inside and by reading the research. The aim is not to give a list of patience tips; it is to explain which arrangements actually work.

First, the source of the contradiction

In this picture two needs sit on the table at the same time, pulling in opposite directions.

The autism side benefits from predictability: knowing what will happen lowers the amount of information to be processed at once. The ADHD side, on the other hand, gets bored of the same structure as soon as it becomes familiar, and motivation drops.

The review by Antshel and Russo (2019) explains that this co-occurrence is not exceptional and why support built for only one of the two falls short.

The practical consequence is this: the inconsistency you see is usually not a character trait but two needs speaking in turn. I covered the details in the article on AuDHD.

Misunderstanding runs both ways

This may be the most important piece of information for those close to someone with AuDHD.

Milton (2012) proposed that the misunderstanding between autistic and non-autistic people is not a one-sided deficiency but a mutual mismatch. The study by Crompton and colleagues (2020) supported this experimentally: information transfer was preserved similarly in chains made up of autistic people and in chains of non-autistic people, but it broke down markedly in mixed chains.

What this means for you: the sentence “I am speaking normally, they do not understand” is incomplete. Both sides struggle to read each other.

When adapting is one-sided, the whole load stays on the other person, and the name of that load is masking. Cage and Troxell-Whitman (2019) report that the intensity of masking and constantly switching modes between contexts are linked to worse mental health outcomes.

So not having to mask at home makes a real and measurable difference.

The five things that help most

I am writing these in the order in which I have seen them work.

Lower the uncertainty. Say the plan early. Time, place, duration and who will be there. “Let's do something this evening” is vague; “eight o'clock at that café, three of us, we leave at eleven” is usable.

Announce changes in advance. A surprise may be well meant but it disrupts preparation. If a change is unavoidable, say so at the earliest possible moment and together with the reason.

Say it, do not hint. The sentence “don't come if you don't want to” is misunderstood on both sides. Saying plainly what you want is not rude, it is easier.

Treat the written channel as legitimate. Opening a hard subject in writing is not an escape. In writing the processing load is low, you can go back and reread, and there is no pressure of an instant reaction.

Recognize the recovery time. The silence that follows a heavy day is not a sulk. I explained what it is in the article on meltdown, shutdown and emotional outbursts in ADHD.

What these five have in common is that none of them asks for a sacrifice. All of them are about the flow of information. The most effective interventions are usually logistical, not emotional, and this also makes the subject easier to talk about. “I will show you more understanding” cannot be measured and is forgotten a week later; “I will tell you the plan at least a day ahead” can be measured and can be kept.

The five things that harm most

These are done with good intentions, and that is exactly why they go unnoticed.

“All this fuss over so little?” This sentence takes the trigger of the event for the last event. Yet the reaction is the bill for a load that has built up over the whole day.

A barrage of spoken orders. Giving three jobs in a row the moment they walk in the door. Working memory is already full at that moment; one of the three stays, and the two that are forgotten become the subject of an argument. Writing it down solves this.

Surprise guests, surprise plans. The intention is lovely, the result is a collapsed preparation.

“But you were fine a minute ago.” Masking is tiring, so after a while it drops. Being fine does not mean the capacity is unlimited.

Endless “why” questions. Asking for an explanation at a moment of struggle, because language processing is the most expensive job at that moment. The explanation is made on a calm day.

The greatest kindness you do for someone close to you is done not in the moment of crisis but on the days when there is no crisis. The agreements made on those days do their work in the moment of crisis.

Concrete suggestions for the home

The difference in mechanism is turned into a difference in arrangement. A few things that take both into account:

  • The skeleton is fixed, the content is free. Mealtime is fixed, what the meal will be is free. Walk time is fixed, the route is free. This is the rare formula that looks after both the side that needs predictability and the side that needs novelty at the same time.
  • Let one room or one corner never change. What rests the senses is familiarity. Not moving things around without notice is a small but big thing.
  • Have a quiet zone. A simple agreement such as not talking while headphones are on prevents many overloads during the day.
  • Keep the task list in writing. A spoken reminder is both forgotten and feels like being supervised. A shared list solves both.
  • Have a right of exit. Let there be a pre-agreed way of leaving an environment early. This extends how long they can stay.

I went into the routine side of these arrangements in the article on the difference in routine between autism and ADHD, and the sensory side in the article on sensory differences in autism and ADHD.

Sentences you can use in communication

Concrete sentences work better than abstract advice, so I am leaving a few.

  • “I need to change the plan. The reason is this. The new version is this. When can we talk?”
  • “Shall we talk now, or shall I write it and send it?”
  • “You don't need to answer right now. Come back whenever you want.”
  • “Shall I do this for you, shall we do it together, or are you taking care of it?”
  • “What is your capacity like today?”

The last question is the one that has helped me most. On its own it can save a day's plan, because it puts asking first instead of guessing.

I wrote the ADHD-specific part of the communication side in the article on how to communicate with someone who has ADHD.

Protect your own limits too

It is easy to skip this section, but it should not be skipped.

Being someone's close one is not a caregiving role. If you take on everything, two things happen at once: you get exhausted and the person in front of you does not build their own system.

A few concrete limits: do not make every reminder yourself; instead support building a system outside you. Do not act as an interpreter in every social setting. Claim your own rest time. And avoid the habit of putting every disagreement down to the diagnosis; not every argument is a symptom, some are just arguments.

How the load is distributed on the relationship side I covered in the articles on a relationship of two people with ADHD and the parent-child dynamic in marriage.

This dynamic forms insidiously. First you take on a job to be helpful, then that job becomes permanently yours, then you become the one who reminds, and at some point the tone of the relationship changes. The other person falls into the position of the supervised and you into the position of the supervisor, and both of you are unhappy about it. What prevents this is handing jobs over to a system rather than a person: a shared list, a calendar alert, an automatic payment, a written agreement. When the system does the reminding, nobody in the relationship becomes the supervisor.

The diagnosis is not your job

Let me put this plainly.

Seeing the pictures in this article in someone close to you does not amount to a diagnosis, and you cannot make the diagnosis. Telling a person “I think you have autism”, even when it is said with good intentions, usually closes the door.

What works is sharing an observation: “It seems to take you a long time to recover after crowded places, do you notice that too?” That sentence is not a diagnosis, it is a door.

If they are curious about an assessment, I described how the process works in the articles on how autism is diagnosed in adulthood and how adult ADHD is diagnosed. Where the two headings part ways I wrote in the article on whether ADHD and autism are the same thing.

Finally

None of the suggestions in this article means erasing yourself to make the other person comfortable.

Most of the things that work are in fact good for everyone: telling people early, speaking openly, written communication, realistic plans. These arrangements are not a privilege; they are how a good relationship should be anyway.

It also helps to set the expectation right. These arrangements do not solve everything. Hard days will still come, plans will still fall apart, on some evenings nobody will be able to talk again. The goal is not zero friction; it is to read the cause of the friction correctly and to reduce the unnecessary part. In relationships that can do this, what changes is not the number of incidents but how soon you recover after them.

And let me end with one sentence: what the person in front of you needs most from you is not a display of understanding, it is that you are predictable.

Frequently asked questions

What can concretely be done to reduce uncertainty?
Telling the plan early, announcing changes in advance and saying things plainly instead of hinting. All three leave the other person room to prepare.
What are the things that harm most?
Well-meant surprises, a barrage of spoken orders and the sentence “all this fuss over so little?”
Why do the contradictions arise?
Because at some points the needs of the two profiles pull in opposite directions: for example needing routine and being bored by routine at the same time.
Is misunderstanding one-sided?
Research points out that it is two-sided. Both sides can struggle to read the other's way of communicating.

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About the author

Cansu is an adult living with ADHD. No professional expertise; the only thing behind these pages is the methods they have tried and their own daily experience. A method that worked for them may not work for you, and one that did not may still help you.

Nothing here replaces medical advice, diagnosis or treatment. Questions about medication and doses belong with your doctor. More about this site.

Sources4
  1. Milton, D. E. M. (2012). On the ontological status of autism: the 'double empathy problem'. Disability & Society, 27(6), 883-887.
  2. Crompton, C. J., Ropar, D., Evans-Williams, C. V. M., Flynn, E. G., & Fletcher-Watson, S. (2020). Autistic peer-to-peer information transfer is highly effective. Autism, 24(7), 1704-1712.
  3. Cage, E., & Troxell-Whitman, Z. (2019). Understanding the reasons, contexts and costs of camouflaging for autistic adults. Journal of Autism and Developmental Disorders, 49(5), 1899-1911.
  4. Antshel, K. M., & Russo, N. (2019). Autism spectrum disorders and ADHD: Overlapping phenomenology, diagnostic issues, and treatment considerations. Current Psychiatry Reports, 21(5), 34.